POGO Interlink Nursing Program Database
Description
The POGO Interlink Nursing Program offers specialized oncology support to families across hospital, home and community environments in Ontario. We collect and retain your patient information in our POGO Interlink Nursing Program Database, a consent-based data holding wherein patients and families provide consent for their information to be collected and used by POGO
Statement of Purpose
What is the purpose of the data holding?
The purpose of this data holding is to securely maintain records of patient admissions and discharges, home visits, school meetings and other program services delivered by the POGO Interlink Nurses. Personal health information (PHI) collected in the data holding is both linked and compared with POGO’s childhood cancer database, POGONIS, to ensure accuracy, facilitate additional analysis and support potential research endeavours.
What PHI is contained in the data holding?
The patient personal health information (PHI) contained in the data holding includes:
- First and last name
- Date of birth
- Medical record number (MRN)
What is the source of the PHI?
Patients and families provide consent for their PHI to be collected by POGO Interlink Nurses from their hospital-based medical records at hospital partners where POGO Interlink Nursing Program services are offered.
Why is PHI needed in relation to the identified purpose?
PHI is required for program planning and evaluation, to enable analysis and reporting to the Ministry of Health and verifying the accuracy of the POGONIS Registration ID for analysis and research through linkages.
Why won’t de-identified and/or aggregate information serve the identified purpose?
De-identified and/or aggregate information will not serve the identified purposes because:
- It cannot verify the accuracy of the POGONIS Registration ID which is necessary to facilitate analysis and research using linkages and
- The POGO Interlink Nursing Program Database is a patient-level, point-of-care database for a service delivery program.
Contact Us
For any questions or concerns about the POGO Interlink Nursing Program Database, please contact interlink@pogo.ca.
We welcome requests for the use of the data in the POGO Interlink Nursing Program Database and other POGO PHI data holdings for analysis and/or research purposes.
POGO values privacy and protects the personal health information (PHI) of children and youth with cancer, survivors of childhood cancers and their families.
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