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Data Anatomy

POGONIS is POGO’s active registry and database on childhood cancer in Ontario. It is a rich source of data, which are available to inform childhood cancer system policy and planning and for research purposes.

POGONIS Data Dictionary

For a copy of the POGONIS Data Dictionary Manual, please contact the POGO Data team.

Disease Diagnosis Overview

Disease Diagnosis Overview Diagram

Status Markers

  • POGO Code
  • Hospital ID
  • Health Card Number
  • Date of birth
  • Postal code (at diagnosis)
  • Patient Registration ID
  • Race
  • Sex
  • Limited Registry
    • Out of Country
    • Out of Province
    • Aged 18 years at diagnosis
    • Etc.

Disease Diagnosis

  • POGO Code
  • Diagnosis
    • Date of definitive diagnostic procedure
    • Pathologically confirmed diagnosis and date
    • Diagnostic code
    • Method of diagnosis
    • ICD-O M Code
    • Benign/NIB/malignant
    • Histology/morphology
    • First or subsequent primaries
    • Biological markers
    • Revised diagnosis and date
    • PET
  • Diagnosis History: Patient
    • Main complaint
      • Date of onset
      • Date of first health care contact
      • First health care contact professional
      • First health care contact setting
      • Date of initial diagnostic procedure
    • Diagnosing institution
    • Referring physician: Name and speciality
    • Responsible physician
    • Protocol/clinical trial
    • Enrolment
    • Height/weight/BSA
    • Treatment start/end date
  • Medical History: Patient
    • Predisposing conditions
  • Disease
    • Stage code
    • Primary site (T code)
    • Site description
    • Extent of disease
    • Relapse site and date
    • Metastatic site(s)
    • Minimal residual disease
    • True disease conversion
    • WBC (ALL)

POGONIS Data Elements

POGONIS Data Elements Diagram

Death Record

  • Date
  • Cause
  • Location
  • Autopsy

Medical Treatments

  • POGO Centre
  • POGO Code
  • Protocol/clinical trial
  • Radiation
  • Cancer surgery
  • Systemic therapy
    • Chemotherapy
    • Biomodifiers
  • HSCT/cellular therapy
  • Secondary surgery
  • Other supportive care
  • Active follow-up treatment
  • Complications of treatment
    • Fever and neutropenia
    • Palliative treatment
    • Major organ system complications
  • Shared care: Type and location

Treatment Service Record

  • POGO Code
  • POGO Centre health service utilization
  • Treatment/service type
  • Treatment/service: Start/end/report year
  • Treatment/service institution
  • Treatment/service provider: Staff/discipline/non-professional
  • Number of events/treatment units
  • Transfer out

POGO Satellite Clinic Program

  • Name of POGO Satellite Clinic

Late Effects

  • POGO Pediatric and Adult AfterCare Clinic
  • POGO Code
  • Late effects by system
  • Neurocognitive/neuropsychological assessment: Yes/no and date

Related Articles

Key Messages

2020 pogo surveillance report

pogo research unit

research fundingActive GrantsPast Grantsdr. mariana POGO research award recipientsPOGO fellowsresearch impact

databases

DATA ANATOMYPOGO Networked Information System (POGONIS)After Care Treatment Summary (ACTS) DatabasePOGO Financial Assistance Program DatabasePOGO Interlink Nursing Program DatabasePOGO School & Work Transition Program Database

data reports

2020 POGO Surveillance Report2018 POGO Surveillance ReportPOGO  Atlas of Childhood Cancer

data requests

data privacy

Data Privacy FAQsData Privacy ReferencesData Privacy Inquiries & Challenges

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